Category Archives: Erika Saboe

Healthcare Proxy / Advanced Directive

Advanced Directive / Health Care Proxy

I finally updated my healthcare proxy.

I’ve noticed that most of the people around me don’t have one. An advanced directive isn’t the same thing as a healthcare proxy. If you’re going to do one or the other, I recommend a proxy because it entrusts your decisions to someone you designate to make decisions for you. You can do an Advanced Directive if you’d like to stipulate exactly what medical care you prefer. Otherwise, you can trust your named person to do it for you. Just don’t entrust this sort of thing with your brother-in-law Bob.

Because I’m not into privacy, Erika is my primary, and my favorite cousin is the alternate. I like to joke and imagine the doctors huddled in my ICU room. “So, what does X want to be done?” Either Lynette or Erika will look them in the eye and say, “He was adamant that he wanted no life-sustaining artifices, but he insisted on a coffee colonic each morning at 4 a.m. Oh! And to be defibrillated in the nether regions twice a day. Set the phaser on maximum, please.”

I imagine everyone knows my general wishes: I don’t mind CPR once or twice if it results in a positive life afterward. I never want to be airlifted; whatever happens, I want it to happen near my home and life. I don’t want to be sustained for any period other than briefly. And if I need to be defibrillated in the nether regions just for amusement, please go for it. It’s exactly what I’d want you all to tell the doctors if only to see their reaction.

It’s been quite a while since my emergency surgery. I’ll never forget that Monday afternoon after work. And I often think about the calm day when the plane crashed at my residence. I don’t think I imagined such a calamity when I skipped work that day and drank my cup of morning coffee. Days like that can and will happen to everyone. Unless you’re certain immortality is at your disposal, it’s wise to make sure you have someone designated. And if you’re married? Name someone for you both, just in the unlikely case that you’re both incapacitated.

Just to give you a little push, most people don’t know that millions of us have inactive aneurysms. Most never cause problems. They can rupture or cause symptoms at any time. I’m not telling you that to make you cringe. I’m giving that example to demonstrate that the universe has a quiver of surprises for us. We are biological machines filled with opportunities to tap on our shoulders.

If anyone reading this doesn’t have a healthcare proxy, they aren’t complicated and only require the signature of two witnesses. I can direct you to where to make one – or I can email you a blank form you can fill out.

I hope all of you add this to your list of “musts.” Otherwise, when the unimaginable happens, your friends and loved ones will scramble to figure out a way to make these decisions for you.

Not related, this morning just before 7 a.m., as I watched a visitor valiantly attempt to rouse a friend at a nearby apartment, I looked up above the horizon to the west to see a long, streaking shooting star blaze into the atmosphere. It was singular and probably high into the sky. But it streaked for a couple of seconds as it obliquely burned into visibility. That meteorite is us. I hope your time here is long and joyful. Don’t forget to take a few moments and add my recommendation to your to-do list. It’ll help your circle in the event you need it.

Love, X

(PS I didn’t mention a Living Will, which is also a great resource.)

Surprise! I’m Me Again

Erika surprised me last weekend with not one but two pairs of shoes. ( She even bought them new. 🙂 ) She was tired of seeing my worn-out but very comfortable work shoes. One of the pairs makes me feel like the god Mercury. The other pair? I literally danced and took off running at Academy when I felt how light they made me feel. I already feel that way most days, as if I’m a burning battery and my feet not quite touching the ground. Just at work today, I walked 23,000 steps, 75 flights of stairs, and jumped three railings. For years, I accommodated a huge amount of weight. I try not to think about spending those years not being the way I was always supposed to be. All the picnic tables I did not jump, all the miles I could have traversed in all manner of places, and the energy hidden inside my body but camouflaged by poor eating choices. Don’t get me wrong. I was very active and especially so because of my job. But there’s no getting around I foolishly convinced myself that it was more pleasurable to overeat than to feel the way I do now. As my friend Tammy taught me to say, nothing tastes as good as this feels. I know I won’t always be this way because age has no choice but to rob us incrementally of mobility. So if you see me jumping things I’m not supposed to be… Laugh and give me encouragement. You can laugh twice as hard if I bust my ass. Because one day, I will be like that native American next to the highway littered with trash, a tear in my eye, as I look upon a picnic table that I can no longer jump. So for today and all the days I can, I will pirouette, jump, climb trees, and remember what it felt like when I wasn’t truly me.

Love X
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Last Morning

I left a homemade bottle light on the huge deck at the Airbnb house. In the deep dark of the valley, it shone like a beacon, looking down on the valley floor where the pond rests. Erika and I left my last Jackie cup up near the ridiculously distant game room/building. I took a picture of the very first part of the driveway. Words can’t describe how steep, serpentine and long it is. Attempting to walk up it is a cardiac stress test even for the fittest. Don’t forget to ask Erika how much she enjoyed the attempt. 🙂 The house is beautiful, especially at night. But if towering windows and isolation give you the heebiejeebies, you would have to sleep in one of the closets here. All of the bedrooms on different levels have uncovered sliding glass doors with a deck that defines description of size. If you’re a fan of light, the huge living area is flooded during the day. The last picture is of camera- shy Erika’s silhouette.
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Airbnb Modesty Test

Modesty test. Erika found a mid-century Airbnb house on the fringe of Fayetteville. 12 acres, encompassing an entire deep valley, complete with a meandering stream. It’s an aging, gargantuan beauty, a multi-level labyrinth. Lots of eccentricities. Towering glass, no shades or curtains. The light-flooded interior recedes to the enveloping darkness in the valley at sunset. I’m certain the feeling of being in the middle of nowhere, although just on the fringe of the city, would run some people’s imagination into weird quarters. I climbed onto the apex of the roof, with a long view of the sloping property, stream, and emerald pond on the opposite side. I felt like I was 12. The master bedroom and accompanying bathroom is not for the timid soul.  If you bathe or shower, if any wandering soul were to jaunt down the long serpentine driveway to the house, they could easily see what God gave you. When I showered, it evoked a laugh. I felt like Chris Farley in his infamous Chippendale dancer skit with Patrick Swayze. I’ll leave it to you to capriciously decide which character I felt like.

I used one picture of Erika from a bird’s eye perspective after I descended from the roof. As always, she’s reluctant to let people see her the way I do. Her hair was illuminated like soft fire in several of the pictures I took surreptitiously. She reluctantly stood next to me and let me take a picture of her with a backward view of the valley and pond below.

The sun finally made its way above the towering valley ridge. Everything is backlit with it and amber orange bloom.

I would describe it as beautiful, but it’s a fragile cliché compared to being present and witnessing it.

Love, X

A Eulogy…Intensely Personal

(I had to add a link instead of uploading the video. My apologies!)

This one is a heartbreaker.

Difficult to make, harder to listen to again.

It’s about Erika’s brother, but it turned out to be about several people.

I remastered the music because it expresses everything that’s said in the words.

Love, X

E c s t a p h o b i a

Noun: A word that describes the feeling that something is about to go miraculously well or so terribly wrong that it might scar you forever.

You can’t step away from the moment, nor would you want to.

Whatever happens, you know it is inevitable, necessary, and life-changing.

You’ll either be fulfilled or left vacantly discontented.

There are words that approximate the feeling, but none capture the personal essence of that infinite certainty that what is about to happen will be a liquid miracle or massive catastrophe. A liquid miracle is one that seeps into everything in your life and finds its way into everything about you: love, an epiphany, the motivation to suddenly just “do” the thing that you couldn’t do before.

The risk of love, the birth of a child, surgery, or the moment when all your reasoning collapses and your course of action becomes a decision rendered as involuntary action and certainty. It is a surrender to the idea that you don’t have control of the outcome.

You’ll be changed forever.

You want it and fear it.

Because our language is entirely invented and arbitrary, I have as much ability to create new words as anyone. Words are what we say they are, just as love and happiness are. I’ve always been fascinated by words and language – and especially the absence of any controlling factor to create and use them. The Dictionary of Obscure Sorrows made me realize just how ridiculous our defense of grammar and etymology is. I will put a link in the comments to a TED talk by the creator of that fascinating idea.

PS If you find yourself in a crux moment, one in which life will either reward or bash you for having the audacity, please remember that you might as well fall or jump into the opportunity. Ask.

“Life is exactly like wanting to go for a ride and jumping on a bicycle with square wheels.” – X

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https://www.youtube.com/c/obscuresorrows

Stones Away

Every stone is a story. Of love, loss, regret, lessons, and acceptance.

I put one down, a singular stone, yesterday.

I placed it on a stem I bit off with my teeth.

Looking closely at the picture, you’ll see it handing in the branches. I took the picture when Erika and I walked the trail yesterday. Our walk went by the place that inspired my “¿” story from last Sunday. Pictures don’t capture how eerily overcast and beautifully the morning was. It was a stolen moment of warmth, falling leaves, and intimacy as our feet moved us along the path.

Fifteen years I carried that weight. I broke the watch purposefully all those years ago. A memento.

It’s on the trail now, maybe forever, maybe for a day.

It’s behind me now. Just as everything really is. I forgot I still had it. As I have with so many mementos lately, I wanted to release it and take back the power it once contained.

Everyone’s wounded in their own way. It’s easy to forget that because we feel like we have to conceal the hurt.

Because optimism is a consequence of love, the stone I left behind yesterday left my fingers easily. Erika stood behind me on the trail, watching me clumsily find my way closer to the abandoned trucks decomposing in the brush. After I walked back to the trail to meet her there and continue our lovely walk, I was happy.

Stones aren’t meant to be carried. They are meant to be measured, appreciated, and then left behind. If I had to carry all my accumulated stones, walking would be impossible, as unlikely as finding happiness if I were focused on my missteps.

Don’t forget your stones. Just don’t carry them.

Every stone in your pocket, in your heart, or in your head reduces your ability to siphon the good from whatever awaits you today.

Love, X
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PS I hadn’t heard the song “Stones” by Barbarossa until yesterday. I didn’t watch “HIMYM” like so many other people did. It got in my head to remind myself that every morning I get to decide whether to carry the stones or hurl them into the air – and away, where they belong.

A Sunrise Sunset Memory

Everything seems to boil down to memory.

The moments flicker past with ridiculous haste.

I remember standing outside, outrageously melancholic and glad to still be around to witness.

There’s a sunrise there, one that didn’t exist in the space around me.

But ask me if I remember seeing it and feeling it?

I woke up with it in my heart this morning.

I’m grateful that deserving it or not plays no part in my world.

Love, X

Lost In Time 2.0

I’m not planning on dying. I penciled it in for 2034.

I’m planning on living.

It makes some people skittish when they observe a loved one or friend “suddenly” giving things away. Don’t be alarmed unless you turn your head as you read this and see someone wearing a unitard behind you. Unitards are universally recognized as sinister, much like the side-eye you get when you’ve annoyed someone just a tad past their irritation point.

I’ve never given away as deeply as this time. That’s true.

From ‘the nail’ to the hand-written Ecclesiastes, a Xmas ornament from my dad’s death, Grandma’s thimble, Grandma’s sewing box, a few special coffee cups, a lot of my artwork (I use the word liberally there), all but basically three of my books, and a slew of other things that had immense sentimental value. There were several practical things that were also beautiful that I rehomed and surprised people with.

The unique nail I attempted to send to my sister still hasn’t surfaced. It may never materialize. It’s easy to feel upset about it, given that it was my most special possession. To remind myself, I think about all the people in the world every day who lose everything – or the people most valuable to them. A nail is insignificant in comparison to such loss and absence. Erika gave me a really old unique nail from her house in Pennsylvania, a weird nail whose story is unknown. There’s a comfort in that, too. It sparks my imagination. That nail has borne witness to many decades, been held by strange fingers, and somehow found its way to me.

When I was mailing my Grandma’s old sewing box, it struck me that my nephew’s daughter is the great-great-granddaughter of Grandma Nellie. That boggles my mind, even though I have a decade+ of ancestry and genealogy experience.

My last remaining aunt isn’t doing well. She took over the mantle of matriarch many years ago, whether she wanted it or not. I love imagining that when she was about five, that she knew a couple of people still living who were born around 1837. All those intervening people had lives, homes, families, and keepsakes. Almost all of them have vanished through the waves of all those decades. No one alive really has living memories of them any longer. They are footnotes, pictures (if we’re lucky), and placeholders in our family trees.

One of the only ways I can appreciate this life is to share the things I hold most precious with other people. I wish I had millions of dollars to share. Some might pay off their houses, some might buy a new car, and some might even take that long-awaited trip to Poland. I hope my nephew appreciates my grandma’s sewing box. That box spans literal generations. I like to think I was just the custodian for it. Each time I took it out to sew, I couldn’t help but think of my Grandma patiently teaching me to thread a needle and do a stitch. Or of Grandpa telling her to stop harping on me about using a thimble. He was a tough man and knew I’d learn very quickly after a few sharp sticks with Grandma’s needles.

I know I’m different from most people. In many ways, I’m envious of people who have a treasure trove of things from their childhood. Birthday cards, letters, pictures, keepsakes, boxes and boxes of things they both love and dread. There is joy in looking through those things, no matter how nostalgic they might make you. People forget that I do very much appreciate the difference between having things for no reason and having them to revisit old moments and people. That some people still have those things has led to me reviving memories of my life that I didn’t recall. Sometimes, they opened new doors into my memories. I hope everyone with such a trove lets them breathe and takes them out from time to time.

Recently, Erika had to leave a mountain of her youth in her old house in Pennsylvania. A lot of it was taken from her without her consent during one of her cleanup trips. The people involved deserve some bad karma. One of the delights that emerged from it? The new owners of her childhood home have been sending her boxes and boxes of surprises left behind. They don’t have to do that. I’m sure they are fascinated by the range of things they’ve found. It’s been quite the treat to watch Erika opening boxes without knowing the depth and breadth of the things being returned to her. All could have been lost forever. Thanks to a good soul, she’s getting them back in waves and increments. It’s a bit of great karma to hopefully wash away the residue of the bad karma from before.

In my case, due to tornados, domestic violence, and burned-down houses, there was no way for me to have much from my childhood. Would I prefer to have a closet of such things? Yes! I don’t want anyone reading this to think differently. Almost all the pictures I have come from people sharing theirs. Just the privilege of sorting and reliving such things would be a cathartic experience for me. I’m a little jealous of everyone who has such an opportunity.

I love wild, colorful things. Not necessarily to possess them. It would be easy for me to fill my apartment with such things. To the rafters. Who wouldn’t want to be surrounded by beauty? The cliché response to this is that we are all surrounded by such beauty, both outside in the world around us, and inside the people we include in our intimate circles.

It’s still weird to me to be poor but yet still feel rich and lucky most of the time.

I’m still breathing, after all.

Take a moment and ensure that no unitard-wearing weirdo is in the room with you. Then, pause to think about whether all the things you own make you happy. If they do, you’re way ahead of the game. Likewise, if something you own and love would enrich someone else’s life, consider giving it away.

It’s all going somewhere.

Someday.

The picture is of two of my aunts. Because of the resolution, I couldn’t enhance it or color it as it deserved.

PS Since I can’t write a post like this without repeating my favorite mantra: if you have pictures of friends and loved ones, share them while you’re breathing. Pictures are the best thing in the world, comparable even to the sensation you get when you feel happy and satisfied.

Love, X
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