Category Archives: Medical

Once In A Lifewhile

Yes, I know I look tired in the picture. But I did sleep last night and woke up grateful again.

I sat with a borrowed cat this morning, its purr against me, slitted eyes sleepily pondering me, and my fingers languorously scruffing its neck. An empty coffee cup was in front of me, its contents too hastily enjoyed. It’s going to take a while for me to fail to appreciate making a cup when I want one, perhaps even a lifewhile, a word that appeared in my head as I stood outside feeling the chill of the morning.

I’d taken out the trash and threw it on top of the unimaginably overfull dumpster. I couldn’t convince myself that it had only been a week since I used my extermination kit to spray the dumpster; it’s a duty I took on to control the ridiculous fly problem. It seemed like a metaphor was at play. I wandered around the outlet of the apartment simplex, observing the distant roll of clouds against the early morning horizon.

My surgeon and hospital team forgot to include work notes or restriction information in my packet; I suppose my five follow-up reminders weren’t a sufficient hint. By sheer accident, my supervisor Joe was standing in the room when I noticed the oversight. He’s accustomed to the complexities and holes in medical care. “I guess I’ll be back at work Monday,” I said. We laughed. I wish I were returning to work tomorrow.

I’m supposed to maintain a routine and stay active. While in the hospital, though I might not have said so before, I did the breathing exercises 100 times a day and walked a thousand loops in the hallway without assistance. The worst thing physically I had to do was to shower myself without help. Not only because I had a massive hole in my abdomen, but because they’d left the IV in the inside of my left elbow, making safe flexibility on that side of my body impossible. I can’t stress enough how HARD that was, but I knew I would go without a shower for a week if I didn’t.

For all of y’all who are concerned, I am “taking it easy.” But I am not laying down or sitting needlessly. I’m working on a plan to reset my diet. Even before The Stay (as I refer to it now), I was formulating an effective way to gain weight. It made me nervous about getting on the scale once I was back at the apartment. My weight had dropped to 142 by Friday afternoon. For those with inside knowledge of my stay, they’ll tell you that I fought tooth and nail to get substantive nutrition and a plan of action; the bureaucracy of care cost me two days of what amounts to starvation without dehydration. Unbeknownst to me, someone who shares a weight loss journey with me was just about to reach out and lovingly tell me to pull up a bit before I had posted my intention to gain some weight back. It’s amazingly easy to take advice from someone who has walked the path themselves – without feeling attacked or defensive.

Even the hydration cost me constant vigilance, though. I still hear the alarms and claxons of the empty bags when I sit in silence. One of the secrets of a hospital stay is that staff will ignore alarms with steadfast consistency. If the person coming in to silence your alarms isn’t assigned to you, they will turn it off without much concern about whether it’ll be refilled or restarted. This includes scenarios whether you’re getting normal saline, anti-seizure medication, antibiotics, or any other drug. Call lights are hallway illumination until someone is ready to acknowledge them. You can’t take it personally. You have to learn to play the game of attention and leverage. It’s unfortunate, but one that no one in the system will possibly deny. This is another reason you need to have someone with you if you’re in the hospital. I have suggestions on how to make a game out of it, too, if you’re interested. This will keep the men occupied, assuming you can get them up and into the hospital room with you.

While in the hospital, I got a teddy bear, a t-shirt, a bag of suckers, flowers, activity books, a few visitors, 357 calls, messages, and well-wishes, all of which I appreciated immensely for one reason or another. AND one request to have something done with my face while I was already in the hospital.

PS A lifewhile is an indefinite length of time characterized by the unease of knowing something significant has shifted yet beyond our perception. In this case, my attacker was unseen in its approach. As I speed away from Tuesday at 1 a.m. when my surgery started, I’m accumulating lessons. The biggest ones are trite and already well-known: people are essential, and life is limited. A lesser-known one is that life is always casting its net out in the world, regardless of who you are or what you’ve accomplished. Your checklist can be full or empty when it snares you.

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I took the above picture to capture that strange shoulder bone protuberance. I could feel that another layer off my body had melted during my hospitalization.

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Another Life

I woke up this morning grateful to hear the birds chirping. Even at 2 a.m., when some miscreant biker needlessly revved his motorcycle with a cacophony to awaken the dead, I was happy. To be alive – and to not be confined to the hospital another night. Twice I awoke, worried that I had imagined my discharge or that I was trapped in a Groundhog Day cycle of never-ending hospitalization.

Washington Regional is about to loosen its visitor restrictions again. It was good practice before – and it’s a better practice now: do as much as you can to have someone with your friend or family member as much as possible to be an advocate for their care. With staffing issues and the seemingly impossible task of coordinating complex care and so many moving parts, one of the single best things you can do for your family member is to simply be an eye and advocate. It is possible to be kind to staff while aggressively pursuing good care for your friend or family member. Never apologize for being an advocate for your loved ones; good healthcare workers are humans too and will not resent your participation. And if they do? Trust your instincts.

I learned a lot of lessons while I was in the hospital. Some of them I’ll probably never write about. Though my eyes were open before being a patient, I’ll never be able to relapse back to ignorance about the challenges our healthcare system faces. For those great people who work hard to be both compassionate and medically competent, I can’t say enough to thank them. For the others, my words won’t have a positive impact on the problems. I’ll have to think about how best to translate much of my experience into a helpful narrative; criticism, even well-earned criticism, seldom lands how we want it to. This is true one-on-one, and more so with complex organizations.

I imagine that many of my experiences will find themselves buried inside jokes, mirthful anecdotes, and disguised narratives. Comedy is one of the best means to hide the truth in plain sight. Most great jokes are wrapped around a nugget of truth, no matter how brazen or outlandish. Here’s an inside joke, based on one of my experiences: “She didn’t fall out of bed. She climbed over and sat on the floor from a surprising height.”

For now, it’s Saturday. The breeze is cool and the birds are dive-bombing their food. I’m waiting on laundry to finish because, well, let’s face it: the laundry doesn’t care where you’ve been. It places its demands like every other mundane chore required of us. In a minute, I’ll carefully go down the flight of stairs into the dungeon to retrieve clothes. And I’ll be happy to do it.

Even the Zen masters have a saying: “Before enlightenment, chop wood, carry water. After enlightenment, chop wood, carry water.”

Each of us has to find a way to not only put one foot in front of the other without fail but also discover a way to find meaning and joy in the distractions.

I’m good.

I hope y’all are good too. I was reminded how much all of us need other people. Even those with tough exteriors need kind words and soft voices sometimes. Life wouldn’t be worth living without other people. I’ve had enough of Blake, though.

Love, X

P.S. I put a picture of my incision in the comments, so you can skip it if you wish. I’m currently working on a series of false and/or creative explanations for the scar I’ll have. I love scars; they remind us that we survived.
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Here’s a post from my social media from Friday morning….

It’s a good thing I’ve always had a wild imagination. Though I was allegedly a fall risk, I was left to get up and take care of myself these last few days. It is odd that the room they put me in overlooks my favorite place at the hospital. Below me is the gazebo, facing out toward the rustic farmhouse. It’s always been an escape and meditative spot. I have stood at the window three dozen times in the last two days, remembering how many times I stood at the gazebo. Sometimes watching the sunrise, sometimes waiting. Off to the right, I can observe the building I normally work in and the relentless comings and goings of daily commerce. The hospital is undeniably a business. But it’s powered by people and people need it to be made whole and healed. I am running toward the idea that I will be able to leave today. It’s possible that the ongoing and inefficient bureaucracy of the place might needlessly prevent that. Hopefully, sooner rather than later, I’ll be back here to work. The first thing I’m going to do, though, is to walk to the gazebo and look up, to perhaps find the window of the room I laid in. We all need people more than we like to admit. I’m already futurizing because that is optimism in action.

P.S. the surgeon’s nurse ripped off the bandage. The wound is really cool, bordered by an insane number of small staples. It avoided my belly button, something that was on my mind for some reason. I contacted my agent. He was so happy, because an unblemished belly button means that I’ll soon be gracing the underwear pages again.

Love, X.

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Here’s a post from my social media from Thursday…

I don’t have a catheter or an ngt tube anymore. (Old friends I never hope to see again…) The IV will be pulled sometime soon too, since I’ve been drinking a river of ice regardless. I haven’t eaten in 68 hours. The irony is that last Friday I started deliberately incorporating other foods into my diet to get my weight up to at least 155 or 160. Did I mention how good the Impossible Whopper was on Saturday? For the last few days I guess it has literally been impossible.

It is such a crazy coincidence that after 11 months of die-hard level commitment to health and healthy eating that something like this unexpectedly slaps me so hard.

I’m starting a clear liquid diet this morning, something that should have happened yesterday. I’ll be polite and skip all of that story for now. PS just because vodka is clear doesn’t mean it’s included in the diet.

I feel terrible for my coworkers, who are already strained from covid and absences. Some of us openly joke about how these kind of surprises and tragedies happen simultaneously. We rarely have enough help to do the job the way it needs to be done. I suspect this may be a universal symptom of our modern times- and the medical field in particular.

I have 2,342 stories already to tell about my incarceration, I mean my hospitalization. I’m glad to be alive to ponder them. But I am leaving here with a first-hand and profound education regarding healthcare. As much as I thought I knew before, this has been a true education.

I hope everything continues to go well and I get out of here. Because this is a bureaucracy, there’s no clear answer or straight path to getting that done.

Meanwhile I’ll continue to engage in a battle of amusement and wit with anybody who comes by. If they get snarky or out of control I usually have a mostly full urinal by the bedside. I’m guessing that it is very aerodynamic.

Thanks to everyone who reached out.

Life can still surprise me.

I hope I can still surprise myself.

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Seeing the Grand canyon and running a marathon might be great, but having my catheter yanked out will certainly be more memorable.

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Here’s a post from my social media from Tuesday…

An obstructed bowel jumped up at 3:30 yesterday and put me in the ER. I had emergency surgery early this morning around 1a.m. Worst pain of my life! I didn’t have time to be anxious or scared. PS no, this is not a Photoshop.

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The Today Road (Tammy’s Success Story)

That’s Tammy on the right, holding her husband’s hand at a Cargill company picnic. I took the picture. It seems as if Chris is looking back at Tammy as she is now. She’s always been funny, smart, and fun. I can only imagine the confidence she feels looking at the span of her life.

A friend of mine waited until she was around 50 years old to change her life. Though health issues motivated her, the ‘how’ of her success falls to the wayside when compared against her ongoing success.

Part of Tammy’s ongoing triumph lies with her husband, Chris. He’s the only person I ever lost a weight loss bet to. Unlike most, he’s managed to stay in great shape since. Tammy having an enthusiastic person in her corner is undoubtedly a fantastic advantage.

Seeing Tammy’s ability to achieve her goal lit an additional fire in me when I had my own epiphany. Though my mental light switch flipped in October last year, I had the unusual idea that I KNEW I would be thin. Knowing Tammy did it with so many health obstacles convinced me that it would be a waste of life and ability if I didn’t see it through. I told her that I was feeding off her success; it became an optimistic and self-fulfilling prophecy.

But if you don’t have someone in your corner, or if you suffer self-doubt? You’re still going to be able to find a way to get healthy if your focus is tuned to your goal. My cousin Lynette gave me the phrase, “Choose Your Hard.” One way or another, life is going to be obstacles, difficulties, and stress. Whether you sail through it while at least trying or struggle with the consequences of not doing so, it will be hard. Attempting to make positive changes will at least give you a purpose; psychology and science prove that having such a purpose makes you happier. It’s a self-fulfilling cycle.

If you try and fail? So what! Life is just as much about failure as success. Try again. You will not succeed until you do. It’s stupidly simple. You don’t need complicated diet plans, gym memberships, or supplements. If you use them to find your success, though? Good for you! Do what works and work that program until what you do becomes a habit. Suppose you can implement small, incremental changes in your attitude and behavior. In that case, you’ll begin to find joy in meeting your goals.

Start from wherever you are. It’s the only place you can.

Tammy faced 2019 head-on. In December 2018, she suffered a sprained ankle. When she went for medical care, she found herself to be at 335 lb. The injury caused blood clots to travel to her lungs. While hospitalized, she had a moment of clarity, very similar to mine, in which she confronted the real possibility that she might die, leaving a beautiful family behind. As life does, it added a kidney stone surgery to her list of obstacles. She started Weight Watchers in April. After six months of care, she had gastric bypass, during which she found out she also had a hernia. She clocked 4 hospitalizations and 3 surgeries in 2019.

Now? She’s still down 160 lbs. To say that her transformation was remarkable is an exaggerated understatement.

Tammy knows that losing weight might be easy. It requires only a short-term adjustment and a frenzy of starvation and exercise. Losing it and maintaining that weight belies a massive shift in behavior, consumption, and environment. Most positive changes do. It’s a lot of invisible work and constant right choices in a world stuffed with delicious food. Tammy puts in the work because who she is now is who she wanted to be all along.

At this point, Tammy gave me the phrase, “Nothing tastes as good as this feels.” While the food might bring temporary delight, it cannot compare to standing on top of a monumental success like Tammy experienced. Success itself feeds her self-image in a way that food can’t. It’s also part of my secret ability to have done 1,500 pushups in a day. That obsession and confidence come from within. You don’t think you can do it until you start succeeding.

No matter what stage you find yourself in, all change starts with a thought. It might be a little seedling in your brain. You might feel powerless to get there. Most of you have the capacity to steal Tammy’s thunder and experiment until you find a way to stop failing. She would want you to. All of us who’ve managed to sidestep our lifelong habits are evangelical about the enthusiasm such changes bring. It didn’t just reduce Tammy’s waistline or make her more beautiful. It made her more HER, a woman brimming with energy and self-confidence.

My goal was to give it my all for a year. That’s October for me.

Tammy’s stayed on course since 2019.

I hope you read this and feel the optimism that my words probably can’t convey.

Whatever your goal or purpose is, take Tammy’s example and try.

With love, X

It Is NOT Complicated

A few people hit me over the head about the ‘no exercise’ component of my weight loss over the last few months.

Naturally, I never advocated a ‘no exercise’ mantra for myself – or others. What I said was, “No additional exercise,” as in no gym, no weights, no byzantine series of micro-exercises that I wasn’t already doing. Part of my system was to avoid doing anything that I might not be able to do for the rest of my life. Having a long history of yo-yo weight loss behind me, I knew this would be a critical component to still be under 175 in a year. Not that I planned on it, but I also developed an alternate plan to take into consideration additional weight if I were to surprise myself and start weight training. Muscle weighs a lot more on your body, but it also burns more calories. It’s folly to compare all body types and exercise components as equal where weight is involved.

In my case, my job is very physical: lifting, walking a lot, and a wide variety of motions.

It’s true that I walk for pleasure. Given that the majority of my weight loss happened when I was not walking for fun, it’s a moot point. When I set out on my weight loss journey, I was experiencing a new foot pain that sidelined me. I could still work, but it wasn’t comfortable. The same is true for the intermittent shoulder pain and back pain that has accumulated. Weight loss has largely reduced all those pains. I try to be grateful that I woke up before my back or knees worsened. It’s a certainty I was headed for something terrible had I not.

Given the warmer weather, I have been walking more. It’s been fun this year, especially since I’ve done a lot of urban walking and seeing the places around me with new eyes. I walked a lot last year, it’s true, but I walked around with 65 extra pounds saddling me. It’s a substantially different experience and at times I feel like I’m walking on clouds. The difference is that striking.

The science is clear: walking is ALMOST as good long-term as running. You can also walk in bursts throughout the day. Science also tells us that doing bursts of exercise cumulatively yields the same health benefits as walking in a single, longer bout. This is also true for other forms of exercise. It’s a shame that most of us are hoodwinked into believing that exercise must be a long session in an artificial setting.

You don’t have to set aside an artificial amount of time for exercise, much less travel to a gym to do so. If you’re creative and committed, you’ll get results, even if you do a series of exercise bouts during your day. If “gyming” works for you, do it. I’m just reminding people that there is another way, one that won’t rob you of your time.

Another thing that always gets stretched when I mention it is that people try to say that I believe that exercise isn’t important. I don’t. It is. What I said over and over is that exercise isn’t viable as the primary component of weight loss and weight maintenance. Exercise has a lot of benefits, socially, physically, and psychologically.

IF you can do so, you can maintain your weight solely by consuming fewer calories than you burn. It’s simple math.

I don’t recommend it. I recommend that you be active. Were my job not intensely physical, I’d have to incorporate other ways to stay active. If I had an office job, I would walk in increments throughout the day. I’d do pushups or resistance exercises. Working from home, I’d do step exercises, walk on a treadmill, or get an exercise bike if that helped my knees and back.

Speaking out of privilege, I know that many people can’t simply eat well and exercise. Economics and social issues affect a lot of people, as do medical issues that make being healthy or weigh less a lot more difficult. One of the knee-jerk reactions I get on the internet is that people insist that I’m talking to everyone, or that my generalizations are for everyone. They’re not.

For those who aren’t restricted by those issues, all that is missing is for you to open your mind a little and recognize that your attitude is a lot of the problem. You don’t ‘need’ a gym, a lot of equipment, or even an hour a few times a week. You need a commitment and a change upstairs. You can walk a few times a day, or ride an exercise bike, one suited for your conditioning. You can eat less, or at least learn new eating habits. You can confide in a friend or family member, in hopes that you can work with someone needing to make a change like you.

You can choose supplements, energy drinks, or any of the thousands of systems out there to help you lose weight. You don’t need any of them, though, not if a commitment gongs in your head. I’m living proof. If a system helps you, use it. While you’re figuring it out, follow the literature and simplify your efforts. You’ll probably see that you’re going to have to choose a path that you can sustain without spending a fortune or spending a lot of hours that you could otherwise live differently.

You can achieve a lot through incremental effort. A word a day. One snack less. Choosing things you love that are also better choices. All of them hinge on something changing in your head. Once that happens, excuses stop being nooses.

Good luck!

Love, X

Gift Horse Bet

I recently went for my annual wellness exam. Despite buckling down fanatically in the last few weeks, I was concerned. A decent bit of the doctor’s visit was a discussion about my upcoming lab work. Because of my previous cholesterol levels, it was a foregone conclusion that I’d most certainly be placed on statins this time. Although I’m not focusing on weight, I’ve reduced the volume I eat substantially, as well as doing my best to eat healthily. For once and for all, I’m also going to find out if a ridiculous amount of weight loss will eliminate the need for blood pressure medication.

Though I knew my lab results were in, I waited for the dreaded call from the doctor’s nurse, wherein she’d give me the bad news about needing an additional drug.

Spoiler alert: the nurse laughed and said, “Whatever it is you are doing X, the doctor wants you to keep doing it – except for the shenanigans.” She went on to say that my lab results were excellent. I didn’t know what to say except to laugh and tell her I’d be back soon enough to tell the doctor I’d lost 20% of my body weight. It did not feel like a humblebrag to say it out loud. While I don’t know what medical surprises will drop like an anvil on me, I do know that I think I finally can give up the yo-yo that’s plagued me.

Thanks, Lemons, Tammy, Mike, and the person who gave me “choose your hard” as a non-optional observation on life.

In 2020, you have to take whatever you can get.

I Have A Question

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I’m still waiting for a reasonable, honest answer to this question: why did the State of Arkansas fail to require a Covid test for all healthcare workers?

You’ll note that the Governor goes out of his way to classify correctional carriers and other sectors. Notably absent? Healthcare workers – one of the single most important possible classifications to track.

It has always been in the public’s best interest to ensure that all healthcare workers are tested, yet proposals to do so have been unceremoniously shown the door like a drunken Uncle on New Year’s Eve.

We’re required to get flu shots each year, among other things.

We mandated that non-emergency patients be tested, yet did not conduct a baseline safety test to benchmark how many of the healthcare workers helping them might be carrying the virus.

Knowing how many healthcare workers have the virus would give us insight into the behavior leading to getting it. After all, healthcare workers are presumed to be the most cautious and educated about this sort of public health hazard. Their infection rate leads to immediate recognition of how well what we’re doing is working.

When I point this out to people, they get that recognizable and confused, puzzled look on their faces, the one that immediately indicates that they assumed that sort of thing had happened.

It hasn’t.

This kind of question falls under “public safety and worker safety” guidelines, so I of course am unconcerned about asking such a reasonable question publicly. I’ve asked it at least 500 times in the last two months.

I’m still asking.

It’s the right thing to do, even at this late date.
– X

¡ Doh !

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Did you know that being generally unhealthy makes you more prone to other diseases and infections?

A team of researchers in Switzerland spent 19 years investigating the link between underlying health issues and onset diseases. On March 23rd, 2018, Dr. Wayne Kerr was inventorying the medical literature section of Barnes & Noble in Lucerne. Suddenly, he found it, the proof his team spent 19 years and millions of dollars investigating. He stood up, screaming for one of his research team members, who was also in the store.

As Dr. Leigh King ran up to him, Dr. Kerr held up the book he discovered:

“No Sh#t, Sherlock: A Field Guide For Discovering The Obvious.”

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P.S. I wrote this after reading someone’s post on social media. His post was rather smart, a fact that amplified my mirth at the idea floating around in my head as a result…

Did you know that being generally unhealthy makes you more prone to other diseases and infections?

A team of researchers in Switzerland spent 19 years investigating the link between underlying health issues and onset diseases. On March 23rd, 2018, Dr. Wayne Kerr was inventorying the medical literature section of Barnes & Noble in Lucerne. Suddenly, he found it, the proof his team spent 19 years and millions of dollars investigating. He stood up, screaming for one of his research team members, who was also in the store.

As Dr. Leigh King ran up to him, Dr. Kerr held up the book he discovered:

“No Sh#t, Sherlock: A Field Guide For Discovering The Obvious.”

You’re Not Going To Believe This One (Read Until The End)

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This is true commentary. Some of it isn’t mine to share. I do no disservice to anyone by hitting the high notes of shame and secrecy. When I open up and share, sometimes people share stories with me. Some of them are stunning. Others are evil. A few are joyous. In a bit, I’ll share the general truth of one such story. I’ll do so by telling it anonymously. Whether it happened in Rogers, Arkansas, or Topeka, Kansas, it is a true story.

Throughout my life, I’ve been on the cusp of several discoveries. Some of have been personal, while others have been the sudden surge in my perception of the world. Given the outright ignorance that was mine to claim when I was young, I find myself surprised by who I am. My early life was cloistered and smelled of copper, whiskey, and sweat. Its soundtrack was a cacophony of shouts. I don’t think some of you truly take me at my word: my life was small for the first part of my life. I understood very little and my ability to grow to understand it was limited by the pathology of who I came from. Nature vs. Nurture lost a fight in my head.

An inquisitive mind took me places. DNA broke down doors. I was 52 before discovering I had another sister, one fathered by my racist Dad. While it was an accident, it would have not happened had I not insisted on following family questions over a long road. Revisionists shouted at me my entire adult life. Most wanted allegiance; when not given, they demanded silence. Failing that, they resorted to sustained anger. Their voices are fading though, leaving me to write the history of all the lives I intersected with. I was stunned to know that my suspicions about my Dad were right. DNA collectively slapped my naysayers in the mouth.

When my Dad fathered my sister, he didn’t know about DNA. He didn’t have an idea that it would expose his behavior 40+ years later. Unlike the news stories I found detailing Dad’s misadventures with crime and his DWI fatality, DNA lurked behind the scenes. I won’t share the details of my Dad’s case because they’re not mine to share.

DNA opens doors that people forget existed.

Which leads me to this inept segue…

Many years ago, a doctor told a young woman that her child died during or shortly after childbirth. The woman went home, heart-broken, and barely managed to move ahead with her life. She later delivered another child with the same doctor. That child lived to adulthood.

In secret, the doctor ‘gave’ the baby to a family who wanted children. The baby hadn’t died after all. This family ended up with two such ‘adopted’ babies. They were aware of the circumstances under which the baby was taken illegally from the mother and that the ‘adoption’ papers were forgeries. The stolen baby grew up with her new family.

When the doctor started his nefarious endeavor, DNA wasn’t a calculation. Paperwork could be falsified, lies told, and an impenetrable cloud of confusion could conceal what he’d done.

The doctor? He wasn’t an average doctor. He was respected, known, and had access.

He earned a rich living, had children of his own, and probably excused away his monstrous behavior by convincing himself that the stolen children would have a better life.

This isn’t a new story. It still happens. DNA makes it more difficult to conceal.

I wonder how many of you knew this doctor, or unknowingly knew the mother robbed of her child? Or went to school with the doctor’s children? What would the doctor’s children think of him if his crime were shared with the world? If you’re reading this, it’s possible you’re related to the doctor or know someone else who had their baby stolen from them. It’s one of the reasons I repeatedly tell people to get DNA tests.

Human behavior covers a wide swatch of possibilities. Doctors, midwives, and churches have all taken turns robbing young women of their children.

Because I’ve run across many variations of human deceit, I know statistically that many people out there aren’t related to the people they think they are. Some, although in increasingly smaller numbers, live a life absent a startling truth, one which DNA can help expose.

In this case, the adopted baby girl grew up used DNA testing to find her biological family. She reached out to her birth mom, the one who’d been told she was dead. I try to imagine the shock and horror of getting such a call – one from the adult daughter you’d mourned. I imagine the further horror of realizing that she’d risked having another baby girl stolen her by having her second daughter delivered by the same doctor.

The adopted baby, now an adult, and the mother who suffered a stolen baby attempted to confront the doctor, who still practiced. They confronted him decades after the fact.

How many times can you imagine the doctor stole babies from young mothers?

Did I mention that this is a real story?

The doctor never discovered the agony of being charged with a crime. He didn’t face public shame by looking out the window and seeing a news crew pull up in the parking lot, knowing his crime had been exposed and his face shown on the nightly news.

I wrote a long post about it but didn’t have permission to tell it to the world. I did enough research to discover that the salient points were easily substantiated.

So, I leave you with this doubt: are you SURE you know who your parents are? I’ll say it again. Because of my personal involvement with other cases, I say with full confidence that some of you are living without the truth.

Love, X

 

In Wonderment, I Look

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This is a weird composite of thoughts, much like the one I wrote last Sunday. I’m still very optimistic overall, for ‘us’ as a whole. I have my doubts that some of us should be trusted to use toothpicks, though.

I’ve been around a few people who need a dose of Negan. Some have been angels. I’ve been a right bastard myself a few times. I used a character from The Walking Dead purposefully, though I abandoned the show a while back. This won’t be the last pandemic we face. It’s a good blueprint for how we’ll do if we don’t substantially snap the heck out of our inability to give everyone good healthcare. Though I’m a liberal, I think our biggest enemy is ‘us.’ Not because we’re separated into nations and interests, but because each of us is part of a collective which pushes the urge toward militancy and diminishes the embrace of things which make our individual lives better. Healthcare, education, and stability continue to bow in service to defense.

Who knew a virus would observe our trillions of dollars of military might worldwide and laugh? Now that we’ve winced long enough at the mercy of an invisible enemy, can we take back a slice of our resources and dedicate it to the prevention of the next one?

Given the presence of asymptomatic carriers, universal precautions are the only means to protect yourself until the bubble pops. Despite doing everything perfectly yourself, you are only as safe as your weakest link. Contact with anyone or anything outside your perfect bubble is a non-zero risk. Universal precautions are not possible on a long timeline. Those that tell us this might be angry when they do so, but they’re not wrong.

Given the false negative rate of the covid test, people who tested negative are not necessarily negative. We have to use the only test we have available, whether it is approved for that use.

If you’re one of those people who are essential and travel in the world, the probability that you’re going to be exposed approaches 100% on a long enough timeline. The Venn diagram of you amidst all the potentially contaminated people and places makes the math irrefutable.

Those who resume their careers in patient care, whether they’re nurses, doctors, aides, or therapists, need a little more praise in the ‘after’ of this. Surviving this cost them invisibly. In the future, everyone in the medical field will have to swallow their fear a bit more, as they agree to stand in the unknown.

We’re all fallible, even those with perfect intentions. ‘We’ rely on people who have to get out into the world while we’re in the bubble. I’m one of those people who have to get out of the bubble. It rarely worries me because I’m almost individually powerless to foresee, much less avoid, danger. I don’t stick the gun in my own mouth. As I tell my friends and family, I earned the right to expect the plane to fall out of the sky onto my head. I don’t walk with my head cocked in anticipatory fear.

As for those who practice perfect isolationism, you’re going to be exposed at an eventual rate of 100%. Time and necessity will insist on it.

If you experience symptoms, it will be very hard for you to get tested – no matter who you are and where you work. We’ll change that by the next pandemic. For this one, though, don’t make the assumption you can get a test. It isn’t true for most people with symptoms.

Even if you are tested, not only are you going to wait days for your result, but at some point you’re going to wonder if you are a false negative. What will help you get over the unease of being an unwitting carrier? Focus on the fact that you were going to be exposed one way or another, anyway. Much like the denizens of The Walking Dead, they discovered they were already walking around with the disease. Unfortunately for us, our condition is that we are genetically no match for the types of viruses that include the coronavirus.

We’ve been focusing on protecting the most vulnerable and of ensuring that our medical system doesn’t collapse.

Despite it being repeated a million times, this was never about guaranteeing you won’t be exposed to the virus.

You will, as will every person you’re accustomed to seeing in your daily life. All of them.

I’ve emerged from my personal experience with some strange observations about my fellow human beings; some bad, some great.

In the ‘after’ of this first wave of the new coronavirus, we must wait to see the data that we’re allowed to see: hospitalizations, intubations, # of those tested, # of those refused tests despite being symptomatic, total deaths, total deaths attributed to the virus, and a mountain of other data.

Reverence for data is important; incorrectly deriving unsupported ideas from raw numbers is to give leeway to manipulation. Science doesn’t demand perfection. It demands a relentless pursuit of ‘better,’  revision, and admission of the need to take another look.

Science can admit its error even when humans cannot. Some of us, myself included, will walk into the ‘after’ in need of more willingness to trust those with expertise to at least throw the dart closer to the target than our limited knowledge can. We’ve moved away from this a bit in the last few years.

We’ll look differently at some of those around us. We’ve  listened and watched as they’ve surprised us. Some with great acts of informed compassion, others with callous disregard. When we catch our breath, literally and figuratively, we will need to deal with what we’ve seen people around us do and say.

Those with means will have different views about the pandemic that those without savings, credit, or the ability to remain inside.

Those with family members suffering from underlying conditions will emerge with ideas, too.

Those who lost family, friends, or livelihoods will reach a distant beach, one that will take some time to come back home from.

Those with fixed ideas and hardened hearts will be untouched by the ability to consider this pandemic from the perspective of the world.

That, without a doubt, is our biggest disease.

 

 

 

X’s Observations on COVID

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If you’re being screened for COVID19 and you see that the screeners are using temporal (forehead) thermometers, you need to check your temperature with an oral thermometer. Despite what some might say, an oral thermometer will eliminate environmental variables, assuming you haven’t been chewing whole ice cubes. While the absence of a fever doesn’t preclude that you have COVID, it occurs in the majority of cases. I’ve personally witnessed a 2 or 3-degree temperature difference between oral thermometers and other types. (*Generally speaking, of course.)

If you don’t own a pulse oximeter, you should purchase one. If you are infected with this virus, the flu, or have other health conditions, your 02 level is one of the single biggest ways to answer the question: “Should I be concerned?” It will signal that you’re deteriorating or at what point you need to call 911 or go to the doctor/ER. You should buy one of these even after our current virus crisis is over.

Additionally, the number of medical people being tested is artificially limited by how willing screening clinics are in administering the test. All those saying we haven’t tested nearly enough people are correct. You would be surprised by the number of people refused tests, even those working in the medical or emergency services fields. We don’t want to squander tests needlessly, of course. With anyone in the medical field or those who must be ‘in’ the world on a daily basis, it should be automatic with symptoms. The same guidelines for the general public don’t translate to dealing with medical workers.
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In Northwest Arkansas, there isn’t a big scarcity of testing kits available, compared to other regions. Our bottleneck seems to be the number of labs at our disposal to perform the lab tests. Some people are still being told it might be a WEEK before getting their results. Senator Rand Paul had to wait 6 days for his, and he’s a United States Senator, and he didn’t self-quarantine during that time. (That’s not a criticism of Senator Paul, by the way, in part because he is a Senator and his job duties are critical. *Someone correctly pointed out that he did go the gym and do some stupid things in the meanwhile, though.)

If you are tested, you are now required to self-quarantine until you get the test results, which is of course an improvement over the previous policy. However…

Those who have symptoms or are turned away then return to their jobs or their families, often with the misguided belief that if the screening methodology indicates they don’t need to be tested, that they are in fact, not positive and pose no risk. For the purposes of this post, assume that those who are turned away or discouraged from a test work in the medical field or another field in which their presence is ‘essential.’ They return to their lives, potentially infecting many more people. ‘Not tested’ does not equate to ‘not infected.’ For public health, these cases should be treated as positive, even absent a test, as it is the safest course of action for society as a whole to prevent needless spread of the virus. In a crisis in which the virus spreads so easily, it’s obvious that anyone working in a critical field should be tested immediately, even if their symptoms only include a fever – but do not rise to the critical level. If our medical system did become overwhelmed, which I do not think it will here in Northwest Arkansas, we’d have to reexamine that policy.

If you’re already quarantined, this won’t affect you on an individual level.

By not quarantining even potentially suspected cases as they arise, we’re creating an expanding circle of exposure. (Obviously, I’m referring to those who can’t be at home each day.) We all know that we’re almost all going to eventually be exposed to the virus. It’s not about being able to sidestep our eventual exposure. All of us will ultimately step up to the fact that we’ve been exposed.

Another concern that people are misunderstanding is the tendency toward a false negative test. (You have the virus, but the test shows that you don’t.) A false positive might scare you, but at least you’ll think you have the virus and take immediate and drastic measures to avoid spreading the disease. In the case of a false negative, the opposite occurs. Given the way the tests are performed, the margin of error is actually quite high. If you google “Bayes’ Rule for COVID19,” you’ll see that false negatives are the biggest threat for how we deal with the virus.

The truth is that many organizations say that all those tested should be quarantined on the side of caution, even though who are tested negative. In the short term, it may cause needless isolation. That needless isolation of critical medical staff will statistically reduce the spread of the virus. We already know that up to 1/3 of all negative tests are incorrect, depending on the variables in the testing system. For every 100 people testing negative, it is possible that 30 of them are actually positive.

After having said all that, a significant portion of the population has been infected and has no symptoms at all. It gives us a sense of false confidence as we proceed with our lives.

Even though you’ve not read my definition of a public place, here it is: any place outside your house where anyone other than the people you’ve been with for the last 14+ days has breathed. If anyone ‘new’ has entered your house, your house is public for 14 more days.

I don’t personally feel alarmed, even if it kills me. Many of us all are doing to do everything perfectly. Yet, it’s going to hurt someone of us badly. I read your posts and hope that we can get back to being pissed off at each other for stupid reasons.

We’re going to get a vaccine, eventually. It won’t be permanent, though. We’re going to need to invest in and trust researchers and science. We’re going to have to stop pretending that anti-vaxxers have a valid viewpoint. Maybe we’ll finally get universal healthcare. Maybe we’ll manage to achieve a cohesive non-profit nationwide collective of clinics and hospital making decisions from the viewpoint of public health.

Our hospital system will not be overwhelmed here locally. I also don’t think we are going to run out of PPE or necessary medical equipment. You would think I’d be cynical about this. I’m not though. I think we are incredibly more prepared that many areas around the United States. No matter what happens, I hope you remember after all this that I was optimistic in our ability to diminish the impact.

We’re lucky we live in Northwest Arkansas. Comparatively speaking, it’s a great place to be quarantined – and an even better place to be if you find yourself needing immediate medical care for the virus. We have an incredible confluence of food, resources, and medical clinics/hospitals to help us get through this.

P.S. Although a few people missed it, much of my post indicated it referred to those in the medical field or those who go out into the world because they are ‘essential.’ Taking this into account quells many of the comments people might make. ‘Err on the side of caution’ is a cliché precisely because it is true and fits the commentary here.